Tuesday, February 26, 2019

Radiation didn't make me glow.


"Stereotactic radiosurgey" is radiation. It's not just surgery. Radiation is the knife. This isn't regular surgery. 

To top it off, mine had never been done before. I didn't have to pay any money. Instead I had to sign papers that family could not sue if I died. I paid with my life. This surgery was a big gamble. I only had a 20-30% chance of survival. 


It shows that beams of radiation were shot into my head.
Watch this video to understand my surgery. 
The radiation unit was mounted on a robot arm. There was no sliding.

 



This video wasn't available when I had my surgery, but you can see that it is from Stanford, where I had the procedure. A lot of this didn't happen with me. My surgery was before this protocol was developed, but a lot of the actions did happen in my case.

My situation was dire. That needs to be understood. 20% chance of survival was better than the current 0% that I had. I was living for almost two years knowing that I could instantly die if I sneezed wrong and set that thing off bleeding again. I had a vascular malformation in my head, not cancer. I had an AVM, an arteriovenous malformation.

I say that it was no big deal. I'm alive. I wouldn't be saying that if I was dead.  

Updated 7/27/2019

Wednesday, February 13, 2019

Basic Homecare




Basic Homecare, I will address what is in this folder and refer you to this blog as a whole since the G+ site is closing. Please join the blog. Know How covers many caregiving and therapy topics.

NUMBER ONE, BE SAFE!




I refer to my transfer, http://braininjuryknow.blogspot.com/2018/09/stand-and-pivot-transfer.htmlI
There are other ways.  Maybe you qualify for a mechanical lift. Your doctor or hospital can refer for training.



l used to use a sock aide. I have a video here.





.The fire dept is your last resort if your patient has fallen. Have a plan.
Night splints- you are going to want something for the person who doesn't walk to wear in bed. The picture is just an idea. I had an all white one and now I have blue. You probably want a boot style with 2 or 3 straps. It has to be comfortable and easy to put on. Without something, bed covers can pull the foot down.

I cover the pressure sore, https://braininjuryknow.blogspot.com/2016/09/the-pressure-sore.html There are more than bed sores. They also occur in wheelchairs and from AFOs.

Don't expose your patient to germs http://braininjuryknow.blogspot.com/2018/02/no-germs.html


I last talk about my bed, http://thoughtfulveg.blogspot.com/2014/03/my-death-bed.html Hospital beds can be ordered by a doctor. They may not fit into a bedroom. Get creative and convert the living room or dining room. It's a good reason to redecorate.